Your child with a hearing loss can succeed - in school, in work, and in
life! It is important to keep this as your focus, whatever your child's age
or degree of hearing loss. While you will have the support of many
professionals, ultimately you as parents will make many decisions about what
is in the best interest of your child. As with all children, there is no
magic formula for raising a child with a hearing loss. It helps to maintain
a positive attitude, educate yourself about hearing loss, seek out the best
resources, and take an active role in your child's education. Most of all,
keep in mind that your child is a child first, and a child with a hearing
loss second.
This online booklet is written for parents of children of all ages and
all degrees of hearing loss. With so much to cover, the information
presented here is only a brief overview, supplemented with a variety of
reference and resource materials so you can follow up on subjects more
thoroughly. In addition, you are encouraged to join the Alexander Graham
Bell Association for the Deaf and Hard of Hearing for access to a huge
variety of resources, including educational programs for you and your child,
a large inventory of books and other publications, video tapes, conferences,
and a national support network.
Will your child have a "normal" life? While some mild-moderate losses can
be surgically or medically corrected, most hearing loss is a permanent
condition. Thus, your child's life will have its challenges. However, these
challenges sometimes turn into advantages. For example, the ability to work
hard and concentrate more, coupled with the routines of audiologic and
language therapy, frequently produces children who are self-disciplined and
focused. Moreover, the outcomes for children with hearing loss have greatly
improved in the last two decades due to major advances in technology and
emphasis on programs of early detection and early intervention.
Emotional Impact of the Diagnosis: Parents can benefit from counseling
and support after the diagnosis of hearing loss. Grief, anger, fear and
denial are natural responses for hearing parents to feel when they find out
their child has a hearing loss. Their expected "normal" child has a problem
and this problem is going to present many challenges. We convey love through
our words and tone of voice as well as through hugs and kisses. We soothe a
child through the sound of our voice, or by singing a lullaby. We teach
children that the objects in their room, their toys, their food, and the
people around them all have names. We show children how to pronounce words
by our example. We discipline and warn children of danger through words as
well as actions. How are we going to do this now?
Deaf parents of deaf children are not necessarily prone to grief because
they are already familiar with living in a world without sound. Deaf parents
may feel more comfortable with a child who is deaf, because this seems
natural. But this isn't the case for most hearing parents, who probably know
little or nothing about hearing loss and who may never have known a child
with a hearing loss. Many deaf parents will teach their child sign language
as naturally as hearing parents unconsciously teach their child to speak.
But hearing parents must commit themselves to the goal of helping their
child listen and speak in order to participate fully in a hearing world, or
the equally arduous task of becoming fluent in sign language and learning
about Deaf culture.
Grief is a common emotion and an honest expression of disappointment and
fear of the unknown. Grief that is not acknowledged or dealt with can lead
to denial of a child's problem, which in turn can lead to procrastination in
taking constructive action. Unacknowledged grief can lead to unfocused and
displaced anger on the part of parents which can last a lifetime.
Acknowledging grief, painful as it may be, will clear away anger and denial,
allowing parents to most effectively nurture their child.